When Dr Jon Hastie was three-years-old, he was diagnosed with Duchenne Muscular Distrophy (DMD), a gradual and devastating neuromuscular disease that primarily affects boys and men.
At the time of his diagnosis the expected life expectancy for DMD sufferers was around 20. Since then however there have been significant improvements in the way DMD is managed and the mean age of death is continuing to rise.
Dr Hastie is now in his mid-thirties and has made a film about the fierce determination that he and fellow DMD sufferers have to “never give in. Never give up”. In short, to live “A Life Worth Living”.
-- This is article #73 in our series of #100Voices4Men and boys
Below is a powerful package from Channel 4 on Dr Hastie and the film:
To find out more about Dr Hastie and his work, visit the A Life Worth Living website here and follow him on Twitter @DrJonHastie
Also on insideMAN:
You can find all of the #100Voices4Men articles that will be published in the run up to International Men’s Day 2014 by clicking on this link—#100Voices4Men—and follow the discussion on twitter by searching for #100Voices4Men.
The views expressed in these articles are not the views of insideMAN editorial team. Whether you agree with the views expressed in this article or not we invite you to take take part in this important discussion, our only request is that you express yourself in a way that ensures everyone’s voice can be heard.